It's that time of year again. That time when I am left anxious with anticipation to determine how the next few months will go. Will I be able to start planning for summer vacation? Will I finish working through the school year? Will I still have hair in the next few weeks? Did the cancer come back? Where did it metastasize to now? My mind has been overflowing with unanswered questions for the past month, just waiting for this scan to hear the results, while continuing to keep up with our day-to-day lives as a family of four with two young kids.
I have to say, I've always considered myself to be a pretty positive, upbeat, glass-half-full kind of girl. Even when I was a kid, I always felt the need to cheer people up and keep smiling. As an adult, not much has changed. I tend to have a smile on my face regardless of how my day is going and can't help but greet people with a big "Hi, how are you!?" whether I know them or not. People think I'm crazy always having such high energy all the time. Someone actually recently asked me how I do it and if I'm always this bubbly all the time. I was kind of taken aback. No one has ever asked me this before but the truth is, I literally cant help it. I like to be happy, as I would imagine most people do, and it brings me happiness to make other people smile. It feels good to interact with positive people so if I can flip someone's day around with just a smile or lighten the mood with a silly joke or a quirky dance move, I'm going to do it! People take life too seriously sometimes and it's too easy to get lost in the ebb and flow of the work grind and stresses of everyday life. Sometimes we need a reminder that it's okay to have a little fun while we do it!
I'm constantly being told how strong and positive I am, especially since my diagnosis. It's what you tell people with cancer, right? You're so strong. You're such a warrior. Stay positive. Don't get me wrong, it's honestly a wonderful compliment and these words can definitely help drive me to want to keep kicking cancers ass. I strive to be strong and positive because I dont want people to feel sorry for me. That would mean that cancer won and I'm not even dead yet! (calm down, we're all going to die some day...) I will do my damndest to never let cancer control my life or take the pep out of my step, but some days are just plain hard. It can be exhausting for anyone to be sunshine and rainbows everyday, but as a woman with metastatic breast cancer, with people expecting you to be strong and positive all the time, sometimes it just sucks. Sometimes you just need to give in to your emotions and fucking cry. Physically ridding yourself of the negativity and taking a deep breath can be so cathartic for me to move forward, take control of what I can and let go of the rest.
For the past few weeks, I have been having some extreme tightness in my left arm. At first I thought it was cording, which is a common side effect after lymph node removal where scar tissue builds up creating what feels like a cord running up your arm. I also noticed that the same arm was feeling achy and weak. Initially, the discomfort would come and go, then it became more permanent. I started doubting the cording and thought maybe it was lymphedema, another side effect after lymph node removal where your arm swells due to improper drainage. I only had four nodes removed though and there really wasn't any noticeable swelling, but I'll hope for the best - there I go again, positive Sarah... But it wasnt going away, so obviously I regrettably turned to Google.
When I was originally diagnosed with bone mets, it was a complete shock. I had no bone pain or any other symptoms to suggest metastases to my spine. If this cancer spreads again, I will honestly have no reference to know what to feel for. I began googling in an attempt to answer my neverending questions, and I started to worry. Yes, even the peppy and positive girl you see everyday gets scared. More and more questions start to flow...Could this be bone mets? Brain mets? Maybe a tumor in my spine is compressing my spinal cord sending this pain down my arm? I find myself falling deeper and deeper into this rabbit hole. I had a PET scan done in August and that was clear, could it be much different already? My next scan was scheduled for Febraury 14th (how romantic...) could I wait that long for results? I tried to make my mind stop. "Sarah, calm down. You've never been this much of a hypochondriac. It's probably nothing!" But what if it was something? Last time I had a serious symptom, I brushed it off assuming it was nothing and it ended up being stage IV breast cancer. How do you come back from that? Let me tell you, you don't. My mind was racing and it wasn't about to stop.
I had an appointment last Monday, and I brought up the strange symptoms. My nurse contacted my APRN who suggested lymphedema, but when I asked about bone mets, she said she could order an xray to be sure. In the middle of putting it all into the computer, she ran into my oncologist and told her about the situation. In comes Dr. T, the most badass woman I've ever met. This woman knows what she is doing and tells it like it is without sugar coating anything which is what I love about her. Everytime I see this her, with the slightest butterflies in my stomach, I just feel content and I know I'm in good hands. She sits down next to me and has me go through my symptoms again. In her nonchalant way, she simply says, "Let's push up the PET to this week and then we can see what's going on". Cue the water works. I actually wanted this to happen just to ease my mind, but the fact that she suggested it before I could even ask made it all the more real. I was scared and I couldn't hide it anymore. She reassured me that she didn't think it was bone mets but we were doing the scan just to be sure. My PET was scheduled four days later.
I was relieved to know that something was being done about my arm and I'd have some answers soon, but not soon enough. I swear I blame Amazon Prime for my impatience! I continued my work week as normal to keep my mind off of it all, but as soon as any down time hit, so did my anxiety. Luckily there's always ice cream to help, but even then I didnt feel much better! Friday rolled around, but my appointment wasnt until 6:30pm. My mom met up with me at UConn to wait with me which was nice since I got there early and they ended up taking me in late of course...
They called my name and the man escorted me outside to the mobile PET unit. Not many hospitals have their own PET scan, so this one goes around to different hospitals to allow people the opportunity to utilize the scan without the cost of having their own. Anyways, we step onto the handicap lift outside the unit in blistery cold New England. He opens the door where we step inside the trailer which wasn't much warmer. Two female techs were sitting in front of computer monitors right in front of us, two recliners were set up behind a door to the right of us, and the PET scan was through the door to the left. The guy has me sit in one of the recliners, checks my glucose level (after fasting since 11am) and attempts to make small talk about the super bowl...sorry, guy, not a big football fan. He ties an orange, stretchy tie around my right upper arm and taps to find a vein. With one quick poke of a needle, we're in. Then, he reached inside a big, silver container with a big, yellow radioactive sticker on it and took out a smaller silver cylinder. Inside is the radioactive tracer that he injects into my arm. While I wait for my super powers to kick in, I lay back in my recliner with no stimulation for 45 minutes. The tech shut off the lights, gave me a blanket, and I am left to relax as much as possible while the tracer makes it's way through my body.
After my 45 minutes is up, I walk to the other side of the trailer to the PET scan. I lay down on the bed of the machine, prop my legs up with a cushion, and they cover me with more blankets. If nurses and techs know how to do one thing, its keep you warm with plenty of blankets! I put my arms above my head and they start the scan. The bed I am laying on begins to rise. Then it slowly goes back and forth, stopping and going, through the machine several times. After about 30 minutes of losing all feeling in my arms and hands, I'm finally done and able to scratch the itch I had on my nose since minute 7! They hand me a paper reminding me to flush my radioactive pee twice when using the bathroom and to avoid close contact with young children for the next 24 hours.....oh, okay....
Now begins the waiting game. Last time, my scan was done Friday morning and results were sent to me that night. This left me to irrationally think I'd actually get results Saturday. Well, Saturday came and went, nothing. Sunday then came and went, still nothing. Are they waiting to tell me in person? Did they find something and need to explain it so they didn't send it to my app? I had another appointment scheduled Monday anyways, are they waiting until then? What is going on!?
I drove to work Monday morning knowing this day was going to go one of two ways. I could either get good news and carry on as if nothing happened, or I could get dreadful news and my life would flip upside down yet again. I finished my last round of tough chemo one day short of one year ago. Was I seriously about to start that up again? I called and spoke with a receptionist who said a nurse would call me back shortly. The nurse called back and informed me that they hadn't even processed the report yet so they will call me back as soon as they hear anything. SERIOUSLY!? More waiting?? How am I supposed to function at work? I could go home but what would that do? This waiting is excruciating! I walk in to see my co-workers and I just start bawling. I wasn't looking for them to do or say anything. All I needed was a safe place to release all of these emotions. The frustration. The fear. The sadness. The anger. I had come to the point after all of this waiting that I was expecting the cancer to be back. When I was first diagnosed, it may sound crazy, but I felt better off accepting that I had cancer before getting the official word. My mantra since then has been to plan for the worst and hope for the best. This time it was no different. I had to prepare myself for this to be cancer again. It might just be some swelling and an easy fix, but it very well might be something more and I just needed to accept that. Of course I'm going to hope that its not, but I just wasn't sure this time.
I brushed away my tears, got a few hugs, and the kids started coming in to start our day. I checked my phone when I could, but still no word. Checked again, nothing...nothing...Wait. I hold my breath and see theres a voicemail. I stepped out of the room and went up to the teachers lounge. I pressed play and put my phone up to my ear while plugging my other ear to be sure I hear every word. It was my oncologist's voice. Oh no, does this mean bad news?
"Hey Sarah, I'm leaving this message because it was a perfect scan. No evidence of any activity...Great news."
And exhale.
I am your normal, everyday mom, wife, sister, daughter, and friend. I just happen to be living with metastatic breast cancer.
Showing posts with label chemotherapy. Show all posts
Showing posts with label chemotherapy. Show all posts
Wednesday, January 29, 2020
Sunday, February 3, 2019
Trust Your Intuition
Well, that's a wrap! My sixth and final chemo treatment has come and gone! One part of me is relieved AF, the other part of me isn't even phased. You see, I'm done with the "chemo" part - the dreadful uneasiness in my stomach, the extreme fatigue, the poor taste in my mouth, and hopefully the uncomfortable GI issues (💩)...but in another three weeks, I'll be back in the same chair, with the same nurse (who I LOVE), hooked up to the same IV. I may not be getting the complete 4-serving cocktail, but I will still be back in the hospital every three weeks, indefinitely.
My cancer spread to my bone before I found it. Everyone always says 'Early detection saves lives!' and 'Good thing you caught it early!' but the truth of the matter is, I didn't. Yes, I could've caught it even later. Yes, it could have spread even more than it did. But reality is reality, and my reality is that my cancer metastasized before we even started treating it...and I can't help but feeling somewhat guilty for that. Now, I'm left driving to Uconn every third Monday while putting Lidocaine on my chest, hoping to numb the pain of the needle poking my skin, and crossing my fingers that the nurse gets a blood return on the first try. I'm left in auto-pilot taking the elevator to the fourth floor, checking in with my name and date of birth, and telling the receptionist that, no, I have not been out of the country in the last 30 days, but damn I WISH!
I may not be going out of the country anytime soon, but I am going to seriously take advantage of this short month we call February! I am planning on seeing as many people and doing as many things as I possibly can, because as soon as March rolls around, it's surgery time. I don't know about you, but just the thought of surgery and slicing my skin open makes my stomach turn! The recovery might be less time than the duration of my chemo, but I hate thinking about the pain I will be in and the way my children will react when I can't hug them or hold them in my arms. I have been trying to plan ahead and reorganize our life to make it as easy as possible to deal with my limited mobility and strength. Right now, my kids are getting to be at a good age where I don't need to worry about carrying them as much. They are 2 and almost 4, so they are definitely getting to be more independent. My 2 year old, T, is still in diapers, but I figured when I need to change him, he can just lay on the floor or climb on the bed. We, also, just switched him out of his crib and into a toddler bed, so I won't have to worry about lifting him for nap time. The only other time I would need to pick him up would be getting into his carseat, but I won't be driving for a while anyways, so someone will always be with me to help with that. So I'm set right?? Wrong. These are my children. They are 2 and 3. They fall down, they get upset, they fight, they struggle. They need their mother and someone there to give a hug and kiss a boo-boo every once in a while! It's going to be difficult, and I know that. I also know that I have so much support around me to help when I need it. I have a husband who is planning on sacrificing his paycheck on our already tight budget to support his family the first few weeks after surgery. I have a mom and dad who live close by and are retired, willing to do anything they can to make this cancer disappear. I have two sisters, near and far, who would do anything to help in an instant. I have in-laws who have already shown so much love and encouragement. I have aunts, uncles, cousins, nieces, nephews, friends, and the list goes on. Now, more than ever, is my time to stow away my pride and accept the help as it is offered. I have already been overwhelmed with the support I have received from people, some of whom I don't even know, and it is comforting to know that you all still have my back. For this, I will be forever grateful.
Now my mind shifts to the logistics of what March 5th will bring. I have been following some other blogs and doing my research online to try to navigate between the different types of surgeries there are. In my search, I learned that most people who have metastatic breast cancer don't actually get a mastectomy at all. Apparently, the reasoning is that once the cancer has spread, there is no added benefit to removing the breasts. To anyone else, a mastectomy is supposed to prevent any leftover cancer cells left inside the breast from spreading to the rest of the body, but to a patient with metastatic disease, the damage is already done. In my case, however, I am young, the cancer has only metastasized to a small part of my spine, and there hasn't been any damage to the bone. My oncology team and I are determined to treat my cancer for cure no matter who says it is incurable. We are treating this like any other breast cancer case and I am confident that my breast surgeon will remove any remnants of cancer there is.
I have opted for a double mastectomy while removing both nipples and most lymph nodes on my left side and under my collar bone. I have met with my breast surgeon, who is the same woman that did my port placement, and we are both on the same page. It is a big surgery, but it is also very routine in this field, so I am not too concerned for the success of the actual procedure. More of my concern comes from the reconstruction side of things. Some women opt out of reconstruction, but, for me, I feel as though I need this added step to feel more comfortable in my own skin once everything is said and done. There are so many different routes you can take to make you feel "normal", but I need to just accept that no matter what I do, I will never get my body back to being as perfectly imperfect as it once was. It's amazing how no one ever thinks their body is perfect until you are forced to deconstruct it and mold it again. A woman's true beauty is in her imperfections, and you'll never quite get it just right. Perhaps I'll need to embrace this notion even more post-op....
After meeting with my breast surgeon, I met with a plastic surgeon who will be doing the reconstruction part of it all. Before meeting with her, I did some solid research to get an idea of what different options their were. Between implant reconstruction and autologous reconstruction, LAT flap, TRAM flap, DIEP flap, over the muscle, under the muscle... I still had no idea what to do! One big concern was that I would be doing radiation after my surgery. Radiation tends to make your skin super tight and makes it much more difficult to work with when considering reconstruction, especially with implants since the goal with that would be to stretch the skin beforehand. Since I would be getting radiation on my back, we decided that a LAT flap was not the best option - this is where you take skin, fat, and muscle from your back to create a new breast. A TRAM flap would take skin, fat, and muscle from my abdomen, but not only would it leave a huge scar, it would also be very difficult to recover from since we use our abdominal muscles so much every day! I did considered doing a DIEP flap, and my PS said I would be a good candidate as well. This would only take skin and fat from my abdominal area, but after examining me, we weren't convinced I would be happy with the results since I am fairly slim. She said I could potentially take tissue from other areas that are more fatty, like my thigh or buttocks, but I still don't feel quite comfortable with the recovery of something like that. I ultimately decided to go for expanders and implants. With an implant surgery, it is pretty likely that they will have to go back in to replace them over time, and there may be issues of my body rejecting the implant altogether, but my gut is telling me that this is the path I should take for now.
The plan is that in the same surgery, once my breast surgeon is done with the mastectomy, the plastic surgeon will go in and put expanders under my pectoral muscle. Every week or so, I will go in to have them injected with saline until they are expanded to how I would like them (don't worry, I won't turn into another Dolly or Pamela!) After they are fully expanded, I will complete radiation (TBD) and have a final surgery to swap the expanders out for the implants. Although radiation may effect the outcome of this type of reconstruction, I decided that I would rather try an "easier" surgery first before slicing my whole body open and moving more things around than I need to. I understand that this may not work as well as I hope, and I may have to go back to get things fixed, but if I have learned anything from this journey so far, it is to trust my intuition. I have never been one to make decisions easily, and this is not an easy decision for anyone, but it is my life, my body, and ultimately my decision on how to move forward. I am becoming more confident in this path I have chosen, but I am ready to take on any other obstacles I may face along the way. Wish me luck!
Thursday, January 10, 2019
A Day in the Life
Well, here I am. I have been blessed with another day, and if you're reading this now, then you were, too - congratulations! Welcome back.
As I am writing this right now, I am sitting on my cozy couch, three days post chemotherapy #5. My fashionable attire consists of black and pink fuzzy socks, my favorite gray sweatpants (thank you TARGET!), a Magnolia t-shirt, a gray zip-up hoodie, and my fav cancer-friendly hat. All I can hear is the wind blowing the lingering leaves outside, the beagle slightly snoring, and the boiler in the basement stealing all my money as it keeps me toasty warm on this cold winter day.
I feel well-rested today, with the help of a late night Atavan to push me into that comatose state I so enjoy being in as I snuggle under my covers by 9pm. It was no later than 6:48am this morning, though, that I heard a gentle 'A-choo' followed by a much bigger 'A-thwew!'. A tiny pitter-patter escalated down the hallway and into my room. 'Mommy, I need a tissue'. L was awake and ready to start our day. After a wipe of her nose, and a quick trip to the potty, she climbed up into bed with me. We quietly talked about our sleeps while T was still dozing in his crib, and recalled what the plan was going to be for the day. But first, Fruit Loops.
Once we heard T waking up, L quickly rushed to his room to say 'good morning'. What sounded as a nice wakeup, turned into shouting and tears before I could even get up. Sometimes they can be so sweet, and other times just so very sour! Apparently, L took his sock off, something hit his head, and all was forgotten after a diaper change...Oh yeah, Fruit Loops!
We made our way into the kitchen for breakfast, when who should show up peering through the big, bay window, but Grammy! Thank goodness. L has school today, so Grammy picked her and T up this morning to have a much more exciting day than being cooped up in this house with me! Once a month, L's school has show & tell, which she is always so excited about. She always chooses to bring a stuffed animal with her, but she is always so proud and makes sure she remembers what their name is before heading out the door. Today is that special day. She decided to bring her beanie baby, 'Nibbler', with her. While she is at school for the morning, Grammy will take T to run some errands or go to the library.
I have the morning to myself. I always dreamed of this kind of day - staying in my pajamas, laying on the couch in silence, actually listening to and guiding the thoughts inside my head. Now that it's forced, though, it doesn't seem like that much fun. I miss my kids. I miss the background noise and chaos running around my house. As early as it felt waking up today with my girl, I love those cozy, quiet moments with her. How many more of those will I have before she's too grown to want to lay with her Mommy, or I am too sore to be able to cuddle with her? Sure, it's nice letting people help with your every day to-do's, but it's an even better feeling when you can get that control back and have the energy to take back the reins. Every week post-chemo, I dread not being able to do all that I can for my children and my family. I just need to remind myself that this state is only temporary. I am halfway through this round's fatigue, and I only have one more cycle left. One day at a time.
In the meantime, I will soak up every little moment I can, and embrace the little things that make up my most beautiful life. Sure, big trips and excursions, sports and dance classes, are good for anyone, but what really shapes your child is how they are loved. Let go of the pressure you face as a parent. Ignore that judgmental voice in your head questioning every decision you make. Slow down, listen to, and simply love your child. That is the most important thing you can do for them.
As I am writing this right now, I am sitting on my cozy couch, three days post chemotherapy #5. My fashionable attire consists of black and pink fuzzy socks, my favorite gray sweatpants (thank you TARGET!), a Magnolia t-shirt, a gray zip-up hoodie, and my fav cancer-friendly hat. All I can hear is the wind blowing the lingering leaves outside, the beagle slightly snoring, and the boiler in the basement stealing all my money as it keeps me toasty warm on this cold winter day.
I feel well-rested today, with the help of a late night Atavan to push me into that comatose state I so enjoy being in as I snuggle under my covers by 9pm. It was no later than 6:48am this morning, though, that I heard a gentle 'A-choo' followed by a much bigger 'A-thwew!'. A tiny pitter-patter escalated down the hallway and into my room. 'Mommy, I need a tissue'. L was awake and ready to start our day. After a wipe of her nose, and a quick trip to the potty, she climbed up into bed with me. We quietly talked about our sleeps while T was still dozing in his crib, and recalled what the plan was going to be for the day. But first, Fruit Loops.
Once we heard T waking up, L quickly rushed to his room to say 'good morning'. What sounded as a nice wakeup, turned into shouting and tears before I could even get up. Sometimes they can be so sweet, and other times just so very sour! Apparently, L took his sock off, something hit his head, and all was forgotten after a diaper change...Oh yeah, Fruit Loops!
We made our way into the kitchen for breakfast, when who should show up peering through the big, bay window, but Grammy! Thank goodness. L has school today, so Grammy picked her and T up this morning to have a much more exciting day than being cooped up in this house with me! Once a month, L's school has show & tell, which she is always so excited about. She always chooses to bring a stuffed animal with her, but she is always so proud and makes sure she remembers what their name is before heading out the door. Today is that special day. She decided to bring her beanie baby, 'Nibbler', with her. While she is at school for the morning, Grammy will take T to run some errands or go to the library.
I have the morning to myself. I always dreamed of this kind of day - staying in my pajamas, laying on the couch in silence, actually listening to and guiding the thoughts inside my head. Now that it's forced, though, it doesn't seem like that much fun. I miss my kids. I miss the background noise and chaos running around my house. As early as it felt waking up today with my girl, I love those cozy, quiet moments with her. How many more of those will I have before she's too grown to want to lay with her Mommy, or I am too sore to be able to cuddle with her? Sure, it's nice letting people help with your every day to-do's, but it's an even better feeling when you can get that control back and have the energy to take back the reins. Every week post-chemo, I dread not being able to do all that I can for my children and my family. I just need to remind myself that this state is only temporary. I am halfway through this round's fatigue, and I only have one more cycle left. One day at a time.
In the meantime, I will soak up every little moment I can, and embrace the little things that make up my most beautiful life. Sure, big trips and excursions, sports and dance classes, are good for anyone, but what really shapes your child is how they are loved. Let go of the pressure you face as a parent. Ignore that judgmental voice in your head questioning every decision you make. Slow down, listen to, and simply love your child. That is the most important thing you can do for them.
Tuesday, January 1, 2019
The Beginning of a New (Year's) Day
Today is January 1, 2019. It is New Year's Day...a day where many people begin new goals, make resolutions, absolve themselves of any negativity and bad habits in their lives. For some reason, people feel they need the start of a new year to have a 'clean slate' and to 'start fresh'. I suppose it makes sense...but I've never been one to make a solid 'New Year's resolution'. Sure, I've told myself that it's time to get in shape, eat healthy, and move more, but I think the timing just always lined up after stuffing my face with food for a month and receiving several discounted gym membership offers in the mail....
Lately, though, I've been taking things a bit slower, living one day at a time. For me, I don't know what each day is going to look or feel like. Instead, I've been creating a 'clean slate' and a 'fresh start' each and every day. If I'm having a bad day one day, whether it's pain or discomfort physically, or feeling sad or worried about my future, I have to remind myself that tomorrow is a new day. Tomorrow is always a new chance to wake up with a better mindset and to feel more refreshed. I feel grateful for my tomorrows. You really never know what tomorrow may bring you or who you may meet. Why wait for the new year to be more generous or to exercise? Why wait to slow down or practice saying 'no' every once in a while? If you really want to be this type of person that you envision for the new year, then just start it when the opportunity comes up! Don't wait. You never know what might get in the way of these goals down the road. Sometimes there may be speed bumps or detours, and sometimes you may never get there...
I have to say, I had a pretty eventful 2018. I closed up my home daycare and pursued a new endeavor in real estate, including coursework over the summer and passing my exam in October. I enjoyed many adventures with my little family of four including hikes, museums, the Ben & Jerry's factory, a flight down to Atlanta, a week on the Jersey shore, and lots of ice cream of course! I FINALLY got to see my childhood idol, Shania Twain, in concert in July (HUGE highlight in my life)!!! I also worked on my health by eating right and running more than I have ever run in my entire life! The year started off pretty great, and most of it was actually really fun! Sadly, it had a tough ending. I know I've said in previous posts that I am remaining positive through all of this, but reality is reality! Getting diagnosed with cancer sucks. It is not how I envisioned my year to end. Yes, I am happy that I was able to experience everything that I did earlier in the year, but no one will ever tell you that they are happy to throw cancer in the mix of everything else in their lives.
I wasn't planning on ending my real estate path after the exam...I had plans to work and start an actual career for myself. Now, that's all on the back burner until I get my health under control. I also wasn't planning to stop running...I had plans to finish my first half marathon. Now, I have to start training from the beginning again, whenever my heart can handle it after chemo is complete, I'm healed from my surgery, and radiation is done. There are things that I've missed out on, things that I wish I could say that I have done in 2018, that just never happened. Sure, there's always this year, and I hope that I can accomplish what I want in 2019, but that is simply not guaranteed. It's not guaranteed for anyone, because no one knows what tomorrow may bring.
In the big scheme of things, 2018 did not end as I wanted it to, and 2019 did not start like I wanted it to, but I have to say, today I am well, and I have high hopes for my tomorrow. Next week, I won't be feeling so great after Monday's infusion, but I need to take it one day at a time. I need to embrace the energy and appetite I have today. I need to take advantage of the quality time I have with my kids while I am able to get up off the couch to do a puzzle with them or take them to the library. I can't worry about next week, I need to appreciate today.
I made my 'resolution' to slow down back in October. I couldn't wait for the new year to be the person I wanted to be. I have always been the type to plan out my life years in advance and to rush through the small steps it takes to get to where I want to be. Now, I am working on living in the present. I am creating memories with my children now instead of worrying about where we are or what we will be doing years from now. Since my diagnosis, I've pushed myself to continue experiencing things outside of the hospital. We had a fantastic Wizard of Oz themed Halloween, went to the Blaze pumpkin festival, ate lots of food on Thanksgiving, visited with Santa in Sturbridge, took a train ride to the North Pole, spent quality time with friends, and enjoyed Christmas with all sides of our family. Cancer is not the journey I wanted to start last year, but it was not my only journey. I am proud of myself for not letting it get in the way of everything I could enjoy, and I am grateful that it pushed me to do things I wouldn't have otherwise done.
Even after this first course of treatment is complete, I hope to continue to feel pushed to experience things in the 'now'. No one knows for sure if 'five-years-from-now' will even exist for any of us, so we need to stop putting so many things off for next week, next month, or next year. Do it now. Call your friend you've been meaning to catch up with. Tell your loved ones you love them. Put your phone down and read a story to your child. Take a road trip. Be the person you want to be - today.
Lately, though, I've been taking things a bit slower, living one day at a time. For me, I don't know what each day is going to look or feel like. Instead, I've been creating a 'clean slate' and a 'fresh start' each and every day. If I'm having a bad day one day, whether it's pain or discomfort physically, or feeling sad or worried about my future, I have to remind myself that tomorrow is a new day. Tomorrow is always a new chance to wake up with a better mindset and to feel more refreshed. I feel grateful for my tomorrows. You really never know what tomorrow may bring you or who you may meet. Why wait for the new year to be more generous or to exercise? Why wait to slow down or practice saying 'no' every once in a while? If you really want to be this type of person that you envision for the new year, then just start it when the opportunity comes up! Don't wait. You never know what might get in the way of these goals down the road. Sometimes there may be speed bumps or detours, and sometimes you may never get there...
I have to say, I had a pretty eventful 2018. I closed up my home daycare and pursued a new endeavor in real estate, including coursework over the summer and passing my exam in October. I enjoyed many adventures with my little family of four including hikes, museums, the Ben & Jerry's factory, a flight down to Atlanta, a week on the Jersey shore, and lots of ice cream of course! I FINALLY got to see my childhood idol, Shania Twain, in concert in July (HUGE highlight in my life)!!! I also worked on my health by eating right and running more than I have ever run in my entire life! The year started off pretty great, and most of it was actually really fun! Sadly, it had a tough ending. I know I've said in previous posts that I am remaining positive through all of this, but reality is reality! Getting diagnosed with cancer sucks. It is not how I envisioned my year to end. Yes, I am happy that I was able to experience everything that I did earlier in the year, but no one will ever tell you that they are happy to throw cancer in the mix of everything else in their lives.
I wasn't planning on ending my real estate path after the exam...I had plans to work and start an actual career for myself. Now, that's all on the back burner until I get my health under control. I also wasn't planning to stop running...I had plans to finish my first half marathon. Now, I have to start training from the beginning again, whenever my heart can handle it after chemo is complete, I'm healed from my surgery, and radiation is done. There are things that I've missed out on, things that I wish I could say that I have done in 2018, that just never happened. Sure, there's always this year, and I hope that I can accomplish what I want in 2019, but that is simply not guaranteed. It's not guaranteed for anyone, because no one knows what tomorrow may bring.
In the big scheme of things, 2018 did not end as I wanted it to, and 2019 did not start like I wanted it to, but I have to say, today I am well, and I have high hopes for my tomorrow. Next week, I won't be feeling so great after Monday's infusion, but I need to take it one day at a time. I need to embrace the energy and appetite I have today. I need to take advantage of the quality time I have with my kids while I am able to get up off the couch to do a puzzle with them or take them to the library. I can't worry about next week, I need to appreciate today.
I made my 'resolution' to slow down back in October. I couldn't wait for the new year to be the person I wanted to be. I have always been the type to plan out my life years in advance and to rush through the small steps it takes to get to where I want to be. Now, I am working on living in the present. I am creating memories with my children now instead of worrying about where we are or what we will be doing years from now. Since my diagnosis, I've pushed myself to continue experiencing things outside of the hospital. We had a fantastic Wizard of Oz themed Halloween, went to the Blaze pumpkin festival, ate lots of food on Thanksgiving, visited with Santa in Sturbridge, took a train ride to the North Pole, spent quality time with friends, and enjoyed Christmas with all sides of our family. Cancer is not the journey I wanted to start last year, but it was not my only journey. I am proud of myself for not letting it get in the way of everything I could enjoy, and I am grateful that it pushed me to do things I wouldn't have otherwise done.
Even after this first course of treatment is complete, I hope to continue to feel pushed to experience things in the 'now'. No one knows for sure if 'five-years-from-now' will even exist for any of us, so we need to stop putting so many things off for next week, next month, or next year. Do it now. Call your friend you've been meaning to catch up with. Tell your loved ones you love them. Put your phone down and read a story to your child. Take a road trip. Be the person you want to be - today.
Wednesday, December 12, 2018
Bloom where you are planted.
Om (noun): The whole universe in one single word. The union of mind, body, and spirit.
Deep breath in.
Exhale.
Om.
Repeat.
Life is busy. Even before my diagnosis, life was busy. I currently stay at home with my two children, ages 2 and 3 1/2. For any other mothers (and fathers) out there, you know how draining, and wonderful, and chaotic that can be. One day is set aside for grocery shopping and laundry, another day is preschool and music class, then there's story time and Christmas shopping, errands and doctor's appointments, and the list goes on. I enjoy spending time with my kids, I do. I just have a hard time when all of these things are crammed into one day. The other problem is that when we try to have down time at home, it tends to leave us with hitting, fighting, constant redirection, and headaches. So, most days we try to get out of the house...
Since my diagnosis, I have wondered how much easier it would be to go through chemo treatment without my kids. I wouldn't need to plan for people to come over every day to make sure they are taken care of. I could sleep in as long as I want to. I would have a quiet house all to myself. Then, I recognized that these two lights in my life are exactly what keep me going. They get me out of bed in the morning, they give me energy when I didn't think I had any, and their little voices remind me that life is worth fighting for.
In the hustle and bustle of parenting, though, anyone can tell you that it is important to dedicate some time for yourself. Get out of the house, alone, and do something for yourself. Get your nails done, get a massage, pick up a hobby, go to the gym, just go for a drive! It doesn't have to be every day, because it's hard enough to make it happen once a week, but at least try to pencil it in your calendar to do something for you.
For me, this used to be running. It helped when the weather was warmer and I was a bit healthier, but I would get out and run four times a week. It was time by myself. I didn't have a diaper bag with me or a toddler on my hip. I didn't need to pack any goldfish or applesauce pouches. All I needed was my running shoes and a hair-tie. Sometimes, I would keep going simply because I didn't want to go home just yet (Is that bad?). Before my first treatment, I made it to 10 miles. My goal was 5 that day, because I didn't think my body could handle much more after learning about my cancer, but I started, and just kept going. I'm so happy I did it, too, because since then, I've only gone out once. I learned that my heart had a hard time keeping up, and I'm afraid to push it too much. I listened to my body and took a break from my summer passion.
Several weeks have passed since I last exercised, which means several weeks have passed since I last took some healthy time for myself. Sure, I've run an errand here and there without any kids in tow, but I needed more. Last week, I experienced my first, true yoga experience. It was exactly what I needed (and perhaps what you need, too). I was out of the house, yes, but more importantly I was in a relaxing space and able to release any tension I had inside of me - physically and emotionally.
When I decided to try out yoga, I had no idea where to go. So, who do I turn to when I need answers? Google. I came across a place called "Bloom Yoga Fitness Studio". It wasn't too far away, and the prices seemed reasonable, so I took a risk and signed up for a drop-in class. When I got there, I was alone, but I was immediately greeted by the friendly staff and met my instructor. She showed me where to put my things, and what equipment I needed. When I was hanging up my coat, I realized I only had on my warm winter hat. I wasn't about to go through the class with that on, so I rocked the bald look! It's funny, when I'm out in public and I take my hat off, it feels as if I'm stripping down naked. I don't know if it's because it automatically reveals my cancer or because it's a part of my body that no one has seen in 28 years, but either way it makes me feel extremely vulnerable. When I excused my 'bald head' to my instructor, she asked if I was going through chemotherapy, to which I responded 'yes'. She reassured me that I looked beautiful and told me about her friend who was just about to start her own chemo journey. I quickly felt much better about my self-image and walked into the class with 10x more confidence.
The lights were dimmed the slightest bit and there was soothing music playing. Six other women were sitting on their mats and I found my spot in between two other ladies. The instructor came in and lightly greeted everyone with a generic "How is everyone doing?" We all responded "Good" and we began. Deep breath in. Exhale. Om. Repeat. I was relaxed. For the first time in a long time, I was focusing on myself. I was focusing on the most basic thing I could do with my body - my breathing. My body was moving and I was able to stretch out these muscles that have been resting for too long. It felt amazing. It was the last five minutes and our instructor told us to lay down on our mats to get ready for Shavasana, or corpse pose. She turned the lights off. The only light in the room was coming through the left door's window, and the song "Be Still" by Sophia came on. All we needed to do was lay there. Lay still with our palms up, completely relax our muscles and breathe. I laid there in the dark while tears streamed down my cheeks. I was breathing. I was alive. I was one with my mind, body, and spirit. My whole self was in that room and I was not worried about anything else. I like to think that they were happy tears, as if it was a complete release of any negativity inside of me. I wiped my eyes dry just as the lights came back on. We sat up on our mats with our legs crossed. Deep breath in. Exhale. Om. Repeat.
Class was over, and I walked out of there feeling absolutely refreshed. I went back again tonight and plan on making it a weekly routine. Cancer will not prevent me from living my life as normally as possible, but if it weren't for cancer, I don't know if I would have ever taken the risk to practice yoga. This disease continues to test me and I continue to prove how much stronger I am than it is. I am learning more about myself everyday, and for that, I am grateful.
Namaste.
Deep breath in.
Exhale.
Om.
Repeat.
Life is busy. Even before my diagnosis, life was busy. I currently stay at home with my two children, ages 2 and 3 1/2. For any other mothers (and fathers) out there, you know how draining, and wonderful, and chaotic that can be. One day is set aside for grocery shopping and laundry, another day is preschool and music class, then there's story time and Christmas shopping, errands and doctor's appointments, and the list goes on. I enjoy spending time with my kids, I do. I just have a hard time when all of these things are crammed into one day. The other problem is that when we try to have down time at home, it tends to leave us with hitting, fighting, constant redirection, and headaches. So, most days we try to get out of the house...
Since my diagnosis, I have wondered how much easier it would be to go through chemo treatment without my kids. I wouldn't need to plan for people to come over every day to make sure they are taken care of. I could sleep in as long as I want to. I would have a quiet house all to myself. Then, I recognized that these two lights in my life are exactly what keep me going. They get me out of bed in the morning, they give me energy when I didn't think I had any, and their little voices remind me that life is worth fighting for.
In the hustle and bustle of parenting, though, anyone can tell you that it is important to dedicate some time for yourself. Get out of the house, alone, and do something for yourself. Get your nails done, get a massage, pick up a hobby, go to the gym, just go for a drive! It doesn't have to be every day, because it's hard enough to make it happen once a week, but at least try to pencil it in your calendar to do something for you.
For me, this used to be running. It helped when the weather was warmer and I was a bit healthier, but I would get out and run four times a week. It was time by myself. I didn't have a diaper bag with me or a toddler on my hip. I didn't need to pack any goldfish or applesauce pouches. All I needed was my running shoes and a hair-tie. Sometimes, I would keep going simply because I didn't want to go home just yet (Is that bad?). Before my first treatment, I made it to 10 miles. My goal was 5 that day, because I didn't think my body could handle much more after learning about my cancer, but I started, and just kept going. I'm so happy I did it, too, because since then, I've only gone out once. I learned that my heart had a hard time keeping up, and I'm afraid to push it too much. I listened to my body and took a break from my summer passion.
Several weeks have passed since I last exercised, which means several weeks have passed since I last took some healthy time for myself. Sure, I've run an errand here and there without any kids in tow, but I needed more. Last week, I experienced my first, true yoga experience. It was exactly what I needed (and perhaps what you need, too). I was out of the house, yes, but more importantly I was in a relaxing space and able to release any tension I had inside of me - physically and emotionally.
When I decided to try out yoga, I had no idea where to go. So, who do I turn to when I need answers? Google. I came across a place called "Bloom Yoga Fitness Studio". It wasn't too far away, and the prices seemed reasonable, so I took a risk and signed up for a drop-in class. When I got there, I was alone, but I was immediately greeted by the friendly staff and met my instructor. She showed me where to put my things, and what equipment I needed. When I was hanging up my coat, I realized I only had on my warm winter hat. I wasn't about to go through the class with that on, so I rocked the bald look! It's funny, when I'm out in public and I take my hat off, it feels as if I'm stripping down naked. I don't know if it's because it automatically reveals my cancer or because it's a part of my body that no one has seen in 28 years, but either way it makes me feel extremely vulnerable. When I excused my 'bald head' to my instructor, she asked if I was going through chemotherapy, to which I responded 'yes'. She reassured me that I looked beautiful and told me about her friend who was just about to start her own chemo journey. I quickly felt much better about my self-image and walked into the class with 10x more confidence.
The lights were dimmed the slightest bit and there was soothing music playing. Six other women were sitting on their mats and I found my spot in between two other ladies. The instructor came in and lightly greeted everyone with a generic "How is everyone doing?" We all responded "Good" and we began. Deep breath in. Exhale. Om. Repeat. I was relaxed. For the first time in a long time, I was focusing on myself. I was focusing on the most basic thing I could do with my body - my breathing. My body was moving and I was able to stretch out these muscles that have been resting for too long. It felt amazing. It was the last five minutes and our instructor told us to lay down on our mats to get ready for Shavasana, or corpse pose. She turned the lights off. The only light in the room was coming through the left door's window, and the song "Be Still" by Sophia came on. All we needed to do was lay there. Lay still with our palms up, completely relax our muscles and breathe. I laid there in the dark while tears streamed down my cheeks. I was breathing. I was alive. I was one with my mind, body, and spirit. My whole self was in that room and I was not worried about anything else. I like to think that they were happy tears, as if it was a complete release of any negativity inside of me. I wiped my eyes dry just as the lights came back on. We sat up on our mats with our legs crossed. Deep breath in. Exhale. Om. Repeat.
Class was over, and I walked out of there feeling absolutely refreshed. I went back again tonight and plan on making it a weekly routine. Cancer will not prevent me from living my life as normally as possible, but if it weren't for cancer, I don't know if I would have ever taken the risk to practice yoga. This disease continues to test me and I continue to prove how much stronger I am than it is. I am learning more about myself everyday, and for that, I am grateful.
Namaste.
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Wednesday, December 5, 2018
Making Reason
Everything happens for a reason.
There is a reason for everything.
Make reason in everything.
I'm not saying I necessarily believe in fate. I'm not even saying that there's necessarily a puppeteer up above, making all of these things happen around us. Regardless, everything happens...and it is up to us to decide how to reason it.
You don't question the good stuff as often, but when the bad stuff rolls around, you always end up asking yourself, at least once, "why me?" It is up to you to answer that question the right way. This is not a time for you to start pointing fingers or blaming yourself. What did you do wrong? Not a damn thing. But you know what you're about to do right? Instead of finding everything you possibly did wrong in the past, you're going to focus on the good things that are coming in the future.
Every time you do something you wouldn't have otherwise done if it weren't for this 'bad stuff' going on in your life, you're going to be grateful for it. Every time you meet a new person, or reconnect otherwise lost relationships, you're going to be grateful. Even places you've gone before, that you're just able to see in a different light because of this 'bad stuff' that may be going on, be happy that you were lucky enough to experience the 'bad stuff'. Without the 'bad stuff', let's face it, we wouldn't have any 'good stuff' to compare it to.
Life is all about balance. There was a time in college when I wasn't all that balanced. I was focusing on the negative things in my life without being able to find the positivity in much of anything. My close friend had died in an awful car accident, another friend had attempted suicide, and my parents were going through a divorce all within my last year of high school. Let me tell you, I spent plenty of time questioning "why me?" I felt as though I had lost control of everything. My life was spinning around me and I didn't know who was going to be there when it stopped. I wallowed in self-pity. I cried. I bled. I starved. I screamed. Then, I finally started to see the light in all of the darkness.
I met my husband through all of this. Most days, it was him guiding me to see this light, and, now, I am grateful for that 'bad stuff' that happened. Our relationship wouldn't be what it is if it weren't for that 'bad stuff'. We would go for hikes, have secret rendezvous in the library, devour bowls of ice cream...all which seemed like little things, but it's those little things that bring the brightest light. Now, the two littlest in our lives, a girl age 3 and a boy age 2, are the brightest lights of all. And now I am forever grateful.
I would've thought, with my depressive past, I would have been more sad about my diagnosis. I was almost scared that I would fall back into that state of darkness. But, now, I think that it is because of all I experienced that senior year of high school, that I remain to be so positive. When you are forced to confront death at such a young age, you quickly learn how precious life is. Most 17-year-olds think they're invincible. They think they can do anything without consequence (or at least nothing more than being grounded). Just two days after I turned 17, I was told that I was never going to see my friend again. Never again hear her laugh or see her smile. It was in that moment, that I really grew up. I learned that I was not invincible, and neither was anyone else. I also developed a new way of viewing the world around me. Since then, I try not to take much for granted, because I have witnessed how it can all be taken away in just a brief moment. Now, my diagnosis just further etches this view of life I have, but I've been through hardships before and I persevered. I know what I am capable of and I know how strong I am. I know that it is through positivity that I will come out of this alive.
Cancer is what is happening right now in my life and I am finding a reason every damn day. A reason to love deeper and hug a little tighter. A reason to move more on my good days and rest more on my not-so-good ones. A reason to reach out to that friend I haven't talked to in too long. A reason to try yoga because I've always wanted to, but never committed. A reason to enjoy the tacos today because my sense of taste, today, is somewhat normal. A reason to have a dance party with my kids while I have the energy. A reason to smile, simply because I still can.
Hey, I wouldn't be writing this blog and connecting with you if it weren't for cancer, right?
There is a reason for everything.
Make reason in everything.
I'm not saying I necessarily believe in fate. I'm not even saying that there's necessarily a puppeteer up above, making all of these things happen around us. Regardless, everything happens...and it is up to us to decide how to reason it.
You don't question the good stuff as often, but when the bad stuff rolls around, you always end up asking yourself, at least once, "why me?" It is up to you to answer that question the right way. This is not a time for you to start pointing fingers or blaming yourself. What did you do wrong? Not a damn thing. But you know what you're about to do right? Instead of finding everything you possibly did wrong in the past, you're going to focus on the good things that are coming in the future.
Every time you do something you wouldn't have otherwise done if it weren't for this 'bad stuff' going on in your life, you're going to be grateful for it. Every time you meet a new person, or reconnect otherwise lost relationships, you're going to be grateful. Even places you've gone before, that you're just able to see in a different light because of this 'bad stuff' that may be going on, be happy that you were lucky enough to experience the 'bad stuff'. Without the 'bad stuff', let's face it, we wouldn't have any 'good stuff' to compare it to.
Life is all about balance. There was a time in college when I wasn't all that balanced. I was focusing on the negative things in my life without being able to find the positivity in much of anything. My close friend had died in an awful car accident, another friend had attempted suicide, and my parents were going through a divorce all within my last year of high school. Let me tell you, I spent plenty of time questioning "why me?" I felt as though I had lost control of everything. My life was spinning around me and I didn't know who was going to be there when it stopped. I wallowed in self-pity. I cried. I bled. I starved. I screamed. Then, I finally started to see the light in all of the darkness.
I met my husband through all of this. Most days, it was him guiding me to see this light, and, now, I am grateful for that 'bad stuff' that happened. Our relationship wouldn't be what it is if it weren't for that 'bad stuff'. We would go for hikes, have secret rendezvous in the library, devour bowls of ice cream...all which seemed like little things, but it's those little things that bring the brightest light. Now, the two littlest in our lives, a girl age 3 and a boy age 2, are the brightest lights of all. And now I am forever grateful.
I would've thought, with my depressive past, I would have been more sad about my diagnosis. I was almost scared that I would fall back into that state of darkness. But, now, I think that it is because of all I experienced that senior year of high school, that I remain to be so positive. When you are forced to confront death at such a young age, you quickly learn how precious life is. Most 17-year-olds think they're invincible. They think they can do anything without consequence (or at least nothing more than being grounded). Just two days after I turned 17, I was told that I was never going to see my friend again. Never again hear her laugh or see her smile. It was in that moment, that I really grew up. I learned that I was not invincible, and neither was anyone else. I also developed a new way of viewing the world around me. Since then, I try not to take much for granted, because I have witnessed how it can all be taken away in just a brief moment. Now, my diagnosis just further etches this view of life I have, but I've been through hardships before and I persevered. I know what I am capable of and I know how strong I am. I know that it is through positivity that I will come out of this alive.
Cancer is what is happening right now in my life and I am finding a reason every damn day. A reason to love deeper and hug a little tighter. A reason to move more on my good days and rest more on my not-so-good ones. A reason to reach out to that friend I haven't talked to in too long. A reason to try yoga because I've always wanted to, but never committed. A reason to enjoy the tacos today because my sense of taste, today, is somewhat normal. A reason to have a dance party with my kids while I have the energy. A reason to smile, simply because I still can.
Hey, I wouldn't be writing this blog and connecting with you if it weren't for cancer, right?
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| Me & Andrew, Sleeping Giant (2009) |
Sunday, December 2, 2018
Chemo 1, 2, 3...
First day of chemo was upon us. I found myself looking in the mirror more often, trying to engrave what I look like into my brain. I was afraid I was going to lose it, that view of myself with my nice skin, a big smile with a few wrinkles, long blonde hair. I tried to envision what I was going to look like in the months to come. Isn't it funny how vain we can be? I was just diagnosed with an incurable disease that could kill me, and I'm worried about what I look like...
I quickly got over the thought of me being bald. I've rocked a pixie style before, and I like to think I have a good amount of confidence to move past the hair loss. The nurses offered a special cap I could wear to possibly save 70% of it, but it would prolong my treatment by a couple of hours each time and sounded pretty uncomfortable. For me, it just wasn't worth it. It's only temporary, and it'll be one less thing to worry about in the morning!
I decided to invite my friend of 25 years over to do the big chop. The kids were home, which was good, so they could watch it happen and not be totally shocked! Meredith tied it up in a bunch of little ponytails and snipped away. It was so empowering! I felt fabulous and TOTALLY ready for my first round of chemo the next morning. I felt like I was putting on my warrior makeup, ready to fucking fight! This cancer bitch did not know who she was messing with!
Round #1 went very smoothly. I went with my husband, Andrew, and it was actually kind of nice just the two of us without the kids. We were able to spend quiet time together, playing cards, fiddling on our phones, and watching TV. I was in a recliner, he was in a less comfortable chair, and we were sitting in front of a bunch of nurses stations, but it wasn't so bad! We got there for about 8:30am and didn't get home until 4:30pm or so. They wanted to administer the medications a bit slower the first time, hoping to avoid any allergic reactions. Everything went well, so next time they promised a more private room...yay!
Three weeks later, I had Chemo #2! My sister, Stephanie, was able to fly up from Atlanta to come with me which was super sweet. Again, it was nice spending quality time with her without our kids around! We love our kids, but adult conversation without interruptions is also good once in a while! I spent a lot of time coloring, we chatted about family and holidays coming up, and she was able to get some work done. They administered the first two medications just fine. About five minutes after they started the third med, Taxotere, I started feeling odd. There was a weird feeling through my abdomen running from my belly button to my chest. I stopped my sister to tell her to grab the nurse. From the time it took her to step out of the room to tell the nurse just outside, and come back in, it went from being a small feeling in my abdomen to taking over my entire upper body. My chest and face were extremely tight and hot, I was having a hard time breathing, and I was seeing spots. Right then and there, for a split second, I thought I was dying. I thought for sure that this poison they were putting inside me was killing me. I tried not to panic, took long deep breathes, and closed my eyes. The nurses stopped the med, gave me a steroid, put me on oxygen, and administered a nebulizer. Within a couple minutes, I was feeling much better. Okay, good, I wasn't dying....I turned to my sister and said "Don't tell Mom about this!"... Unfortunately, I lost the private room privilege after this. Damn.
After the reaction scare, the rest of my second treatment went well! They slowed down the Taxotere and worked their way back up again to where it needed to be. I was able to enjoy the rest of my sister's visit that night before she had to fly back home the next morning. Three weeks later, and it was already time for Chemo #3! It was just after Thanksgiving so the timing was perfect! I was feeling great and able to really enjoy all that comes with this wonderful holiday! The food was fantastic and we were able to spend time with all of our family as normally as possible. My friend Jackie came down from New Hampshire that Sunday to join me in my next treatment. It was so special to have her here with me and I knew she would be a great person to have by my side, especially if anything went wrong like last time. It's always reassuring having another nurse next to me! Again, the first two meds went just fine, and then they started the Taxotere. Since I had a reaction before, they started me slow and were going to work me back up. Well, they started me slow and I STILL had another reaction. What the hell?? It definitely wasn't as bad as before, but I was starting to feel that chest tightness again. They stopped the med, gave me a steroid, and started even slower. After that, I was fine. Next time, the plan is to just give me a steroid along with my other pre-meds to hopefully prevent the reaction all together.... we will see!
And just like that, I have Chemo 1, 2, AND 3 in the books!!! Whoaa we're halfway there! (Thank you Bon Jovi!)
I quickly got over the thought of me being bald. I've rocked a pixie style before, and I like to think I have a good amount of confidence to move past the hair loss. The nurses offered a special cap I could wear to possibly save 70% of it, but it would prolong my treatment by a couple of hours each time and sounded pretty uncomfortable. For me, it just wasn't worth it. It's only temporary, and it'll be one less thing to worry about in the morning!
I decided to invite my friend of 25 years over to do the big chop. The kids were home, which was good, so they could watch it happen and not be totally shocked! Meredith tied it up in a bunch of little ponytails and snipped away. It was so empowering! I felt fabulous and TOTALLY ready for my first round of chemo the next morning. I felt like I was putting on my warrior makeup, ready to fucking fight! This cancer bitch did not know who she was messing with!
Round #1 went very smoothly. I went with my husband, Andrew, and it was actually kind of nice just the two of us without the kids. We were able to spend quiet time together, playing cards, fiddling on our phones, and watching TV. I was in a recliner, he was in a less comfortable chair, and we were sitting in front of a bunch of nurses stations, but it wasn't so bad! We got there for about 8:30am and didn't get home until 4:30pm or so. They wanted to administer the medications a bit slower the first time, hoping to avoid any allergic reactions. Everything went well, so next time they promised a more private room...yay!
Three weeks later, I had Chemo #2! My sister, Stephanie, was able to fly up from Atlanta to come with me which was super sweet. Again, it was nice spending quality time with her without our kids around! We love our kids, but adult conversation without interruptions is also good once in a while! I spent a lot of time coloring, we chatted about family and holidays coming up, and she was able to get some work done. They administered the first two medications just fine. About five minutes after they started the third med, Taxotere, I started feeling odd. There was a weird feeling through my abdomen running from my belly button to my chest. I stopped my sister to tell her to grab the nurse. From the time it took her to step out of the room to tell the nurse just outside, and come back in, it went from being a small feeling in my abdomen to taking over my entire upper body. My chest and face were extremely tight and hot, I was having a hard time breathing, and I was seeing spots. Right then and there, for a split second, I thought I was dying. I thought for sure that this poison they were putting inside me was killing me. I tried not to panic, took long deep breathes, and closed my eyes. The nurses stopped the med, gave me a steroid, put me on oxygen, and administered a nebulizer. Within a couple minutes, I was feeling much better. Okay, good, I wasn't dying....I turned to my sister and said "Don't tell Mom about this!"... Unfortunately, I lost the private room privilege after this. Damn.
After the reaction scare, the rest of my second treatment went well! They slowed down the Taxotere and worked their way back up again to where it needed to be. I was able to enjoy the rest of my sister's visit that night before she had to fly back home the next morning. Three weeks later, and it was already time for Chemo #3! It was just after Thanksgiving so the timing was perfect! I was feeling great and able to really enjoy all that comes with this wonderful holiday! The food was fantastic and we were able to spend time with all of our family as normally as possible. My friend Jackie came down from New Hampshire that Sunday to join me in my next treatment. It was so special to have her here with me and I knew she would be a great person to have by my side, especially if anything went wrong like last time. It's always reassuring having another nurse next to me! Again, the first two meds went just fine, and then they started the Taxotere. Since I had a reaction before, they started me slow and were going to work me back up. Well, they started me slow and I STILL had another reaction. What the hell?? It definitely wasn't as bad as before, but I was starting to feel that chest tightness again. They stopped the med, gave me a steroid, and started even slower. After that, I was fine. Next time, the plan is to just give me a steroid along with my other pre-meds to hopefully prevent the reaction all together.... we will see!
And just like that, I have Chemo 1, 2, AND 3 in the books!!! Whoaa we're halfway there! (Thank you Bon Jovi!)
Friday, November 30, 2018
Know your body.
It was early September. My daughter, L, just started preschool. My son, T, and I were getting ready for all kinds of adventures just the two of us. My husband, Andrew, went back to work after a beautiful summer off, and I had just finished my five-week Real Estate course. I was busy studying to get ready for my exam, while training for my first half marathon!
One morning, I woke up and noticed a large bump on my left breast. I questioned it, but brushed it off. My body had been through two pregnancies in two years, I recently started exercising, and lost about 20 lbs. I figured I would give it a month to see if anything changed. Maybe it was hormonal? I am young and do not have a strong family history of breast cancer. Hell, I've never had a major medical concern in my life at all!
Over the next couple weeks, I continued to notice the bump. Though it wasn't so much as a bump, but a mass. It continued to bother me. I was training for my very first half marathon. I had never been so focused on something like I was when I was running and did not want to let this get in my way, no matter what it was. I was determined to wait to see a doctor until after my race at the end of October.
It couldn't be breast cancer. Google said I would have discomfort, nipple discharge, inverted nipples, change in color to my breast...I had none of the above.
The mass that I felt did not hurt. I did not gradually notice it. It was as if one day, it was just there, and it was big. It was firm. It was not normal for me. Still, I gave it time and I did not want to panic.
A couple weeks later, I remember cleaning out L's room, helping her organize all of her toys, when I felt a slight pain under my left armpit. When I touched it, it was the pea-size ball that really caught my attention.
Now, I may have been having some normal congestive symptoms with two boogery kids in the house and a husband who is a school teacher at the start of his school year, but I know my body. I have never experienced swollen lymph nodes when I get sick. Red flag.
I called my doctor right away. It was Monday, and they were able to get me in on the next day.
I met with my doctor and she could definitely feel what I was feeling. She said it could be a whole spectrum of things, but she ordered me an ultrasound and mammogram just to be sure.
I was able to meet with a radiologist Wednesday morning. First, we did an ultrasound, and followed up with the mammogram. I am 28 years old. I went to this appointment alone because I knew it would be nothing. Except, every step I had been taking so far, was not so reassuring. The radiologist came back into the ultrasound room and determined we needed to biopsy my breast because they could not factor out cancer.
This whole time I had been thinking it was nothing. I thought I was that annoying patient who went in for a minor concern that they see all the time. Now the gears shifted.
"Could I actually have breast cancer?"
I was alone. I left that appointment in tears when I should have been smiling. After a quick stop to the bathroom to take a breath, I made my way home to my family. As soon as I got home, I wrapped everyone up in my arms and never wanted to let go. The next few days of waiting were not going to be easy.
Friday was my biopsy day. This was no walk in the park by any means, but I made it through. Honestly, it felt as if they were taking a nail gun and shooting it at my chest. The needle was guided by the ultrasound so they could see where they were in the breast, and they placed little markers inside so we could see where they biopsied in a mammogram image. I was supposed to receive results either Monday or Tuesday. The nurse said if it's good news, they would call, if it was bad news, I would get a call from my regular doctor. Monday night I was supposed to take my Real Estate exam.
After a long weekend, Monday rolled around. My mom and I took the kids to a local pumpkin patch. It was cloudy and wet, but I needed to keep busy and wanted someone with me in case I got the call. Nothing.
Monday night came, and I still wasn't sure if I wanted to take my exam. I already paid for it, and if I took it I probably wouldn't pass because my mind was not in it at all, but if I rescheduled and this ends up being cancer, when would I ever take the test. I took the exam that night at 5:30pm. I passed the exam at 7:15pm. On Tuesday morning at 11:07am, my phone wrang. It was my regular doctor. My heart sunk. She asked me how I was, and said the words...
"I am so sorry, but it is cancer."
How was I supposed to respond to this? I don't even think I cried. My body was taken over by complete shock. I was already preparing myself for the worst, and hoping for the best, but the worst is what got me. I got off the phone and turned to my mom who was standing there with me in the kitchen. We hugged in disbelief and I looked at the clock. Life kept going, time kept ticking. It was now 11:17am, time to pic L up from school...
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